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H. B. Bentzen · SciRah

Researcher profile · Semantic Scholar

H. B. Bentzen

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H. B. Bentzen — researcher profile on SciRah

h-index: 16
Works: 39
Citations: 1,142

Most-cited papers

Dynamic Consent: a potential solution to some of the challenges of modern biomedical research
I. Budin-Ljøsne, H. Teare, J. Kaye, S. Beck +11 more
2017BMC Medical Ethics313 citations Open access
Semantic Scholar
GestaltMatcher: Overcoming the limits of rare disease matching using facial phenotypic descriptors
Tzung-Chien Hsieh, Aviram Bar-Haim, Shahida Moosa, Nadja Ehmke +43 more
2022Nature Genetics184 citations Open access
Semantic Scholar
PEDIA: prioritization of exome data by image analysis
Tzung-Chien Hsieh, M. Mensah, J. Pantel, D. Aguilar +90 more
2018Genetics in Medicine83 citations Open access
Semantic Scholar
Towards better governance of human genomic data
Kieran C. O'Doherty, Mahsa Shabani, E. Dove, H. B. Bentzen +20 more
2021Nature Genetics71 citations Open access
Semantic Scholar
If you build it, they will come: unintended future uses of organised health data collections
Kieran C. O'Doherty, Emily Christofides, Jeffery Yen, H. B. Bentzen +4 more
2016BMC Medical Ethics71 citations Open access
Semantic Scholar
The challenges of the expanded availability of genomic information: an agenda-setting paper
P. Borry, H. B. Bentzen, I. Budin-Ljøsne, M. Cornel +13 more
2017Journal of Community Genetics58 citations Open access
Semantic Scholar
Remove obstacles to sharing health data with researchers outside of the European Union
H. B. Bentzen, Rosa Castro, R. Fears, George Griffin +2 more
2021Nature Medicine48 citations Open access
Semantic Scholar
Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research
Melanie Goisauf, G. Martin, H. B. Bentzen, I. Budin-Ljøsne +9 more
2019PLoS ONE31 citations Open access
Semantic Scholar
Balancing Protection and Free Movement of Personal Data: The New European Union General Data Protection Regulation
H. B. Bentzen, Njål Høstmælingen
2019Annals of Internal Medicine30 citations
Semantic Scholar
Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?
I. Budin-Ljøsne, D. Mascalzoni, S. Soini, H. Machado +9 more
2016Biopreservation and Biobanking28 citations Open access
Semantic Scholar
Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries
R. Biasiotto, Jennifer Viberg Johansson, Melaku Birhanu Alemu, V. Romano +16 more
2023Journal of Medical Internet Research26 citations Open access
Semantic Scholar
Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?
D. Mascalzoni, H. B. Bentzen, I. Budin-Ljøsne, L. Bygrave +17 more
2019Annals of Internal Medicine26 citations Open access
Semantic Scholar
Preferences of the Public for Sharing Health Data: Discrete Choice Experiment
Jennifer Viberg Johansson, H. B. Bentzen, Nisha Shah, E. Haraldsdóttir +4 more
2021JMIR Medical Informatics24 citations Open access
Semantic Scholar
Back to WHAT? The role of research ethics in pandemic times
J. Solbakk, H. B. Bentzen, S. Holm, A. K. T. Heggestad +6 more
2020Medicine, Health care and Philosophy23 citations Open access
Semantic Scholar
What ethical approaches are used by scientists when sharing health data? An interview study
Jennifer Viberg Johansson, H. B. Bentzen, D. Mascalzoni
2022BMC Medical Ethics19 citations Open access
Semantic Scholar
Dynamic governance: A new era for consent for stem cell research
Rosario Isasi, H. B. Bentzen, Morris Fabbri, Antonie Fuhr +6 more
2024Stem Cell Reports17 citations Open access
Semantic Scholar
Governance mechanisms for sharing of health data: An approach towards selecting attributes for complex discrete choice experiment studies
Jennifer Viberg Johansson, Nisha Shah, E. Haraldsdóttir, H. B. Bentzen +4 more
2021Technology and Society13 citations Open access
Semantic Scholar
A practical checklist for return of results from genomic research in the European context
D. Vears, N. Hallowell, H. B. Bentzen, Bridget Ellul +9 more
2023European Journal of Human Genetics12 citations Open access
Semantic Scholar
Governing health data across changing contexts: A focus group study of citizen's views in England, Iceland, and Sweden
Nisha Shah, J. Johansson, E. Haraldsdóttir, H. B. Bentzen +4 more
2021Int. J. Medical Informatics12 citations Open access
Semantic Scholar
GestaltMatcher: Overcoming the limits of rare disease matching using facial phenotypic descriptors
Tzung-Chien Hsieh, Aviram Bar-Haim, Shahida Moosa, Nadja Ehmke +43 more
2021medRxiv10 citations Open access
Semantic Scholar
Exchange of Human Data Across International Boundaries.
H. B. Bentzen
2022Annual Review of Biomedical Data Science6 citations Open access
Semantic Scholar
How to operationalise human rights for COVID-19 measures
Njal Hostmaelingen, H. B. Bentzen
2020BMJ Global Health6 citations Open access
Semantic Scholar
The Key Features of a Genetic Nondiscrimination Policy: A Delphi Consensus Statement.
Diya Uberoi, G. Dalpé, Katherine Cheung, Emma Kondrup +39 more
2024JAMA Network Open5 citations Open access
Semantic Scholar
Maximizing the GDPR potential for data transfers: first in Europe
H. B. Bentzen, Hilde Kvammen Olav, G. Ursin
2023The Lancet Regional Health - Europe5 citations Open access
Semantic Scholar
Jurisdictional Challenges Related to DNA Data Processing in Transnational Clouds
D. Svantesson, H. B. Bentzen
20175 citations
Semantic Scholar
Understanding recessive disease risk in multi‐ethnic populations with different degrees of consanguinity
Luis A. La Rocca, J. Frank, H. B. Bentzen, J. Pantel +3 more
2023American Journal of Medical Genetics. Part A4 citations Open access
Semantic Scholar
Open science and sharing personal data widely – legally impossible for Europeans?
G. Ursin, H. B. Bentzen
2021Acta oncologica4 citations Open access
Semantic Scholar
Correction: Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research
Melanie Goisauf, G. Martin, H. B. Bentzen, I. Budin-Ljøsne +9 more
2019PLoS ONE4 citations Open access
Semantic Scholar
Genome sequencing in research requires a new approach to consent.
I. Budin-Ljøsne, H. B. Bentzen, J. Solbakk, O. Myklebost
2015Tidsskrift for Den Norske Laegeforening4 citations Open access
Semantic Scholar
A guide to using embedded ethics in human stem-cell-based embryo model research.
H. B. Bentzen, M. Gaillard, I. Nachman, Daniel Reumann +10 more
2026Nature Cell Biology3 citations
Semantic Scholar
Unresolved ethical issues of genetic counseling and testing in clinical psychiatry
Julia Perry, Eline Bunnik, M. Rietschel, H. B. Bentzen +19 more
2025Psychiatric Genetics2 citations Open access
Semantic Scholar
If it ain’t broke, don’t fix it? Ten improvements for the upcoming tenth anniversary of the General Data Protection Regulation
D. Kloza, Laura Drechsler, Elora Fernandes, Arian Birth +6 more
2026Computer Law & Security Review1 citations Open access
Semantic Scholar
GestaltMatcher Database - A global reference for facial phenotypic variability in rare human diseases
H. Lesmann, Alexander Hustinx, Shahida Moosa, H. Klinkhammer +157 more
2024Research Square1 citations Open access
Semantic Scholar
Drop of Prevalence after Population Expansion: A lower prevalence for recessive disorders in a random mating population is a transient phenomenon during and after a growth phase
Luis A. La Rocca, J. Frank, H. B. Bentzen, J. Pantel +3 more
2020bioRxiv1 citations Open access
Semantic Scholar
What ethical approaches are used by scientists when sharing health data? An interview study
Jennifer Viberg Johansson, H. B. Bentzen, D. Mascalzoni
2022BMC Medical Ethics0 citations Open access
Semantic Scholar
What are the Ethical Approaches Used by Experts When Sharing Health Data? - An Interview Study
J. Johansson, H. B. Bentzen, D. Mascalzoni
20210 citations Open access
Semantic Scholar
In the Name of Scientific Advancement: How to Assess What Constitutes ‘Scientific Research’ in the GDPR to Protect Data Subjects and Democracy
H. B. Bentzen
2020Disinformation and Digital Media as a Challenge for Democracy0 citations Open access
Semantic Scholar
The EU’s General Data Protection Regulation has two faces.
Njål Høstmælingen, H. B. Bentzen
2019Tidsskrift for Den Norske Laegeforening0 citations Open access
Semantic Scholar
Are requirements to deposit data in research repositories compatible with the GDPR
D. Mascalzoni, H. B. Bentzen, I. Budin-Ljøsne, L. Bygrave +17 more
20190 citations
Semantic Scholar

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