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J. Bogetz · SciRah

Researcher profile · Semantic Scholar

J. Bogetz

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J. Bogetz — researcher profile on SciRah

h-index: 18
Works: 111
Citations: 1,051

Most-cited papers

Disparities in Inpatient Intensity of End-of-Life Care for Complex Chronic Conditions
Emily E. Johnston, J. Bogetz, O. Saynina, L. Chamberlain +2 more
2019Pediatrics68 citations Open access
Semantic Scholar
Parents Are the Experts: A Qualitative Study of the Experiences of Parents of Children with Severe Neurological Impairment During Decision-Making
J. Bogetz, A. Trowbridge, H. Lewis, K. Shipman +3 more
2021Journal of Pain and Symptom Management67 citations Open access
Semantic Scholar
Caring for Children With Medical Complexity: Challenges and Educational Opportunities Identified by Pediatric Residents.
J. Bogetz, Alyssa L. Bogetz, Caroline E. Rassbach, Julia M. Gabhart +1 more
2015Academic pediatrics49 citations
Semantic Scholar
Parental Decision-Making for Children with Medical Complexity: An Integrated Literature Review.
D. Jonas, Caitlin M. Scanlon, J. Bogetz
2021Journal of Pain and Symptom Management45 citations Open access
Semantic Scholar
"I Could Never Prepare for Something Like the Death of My Own Child": Parental Perspectives on Preparedness at End of Life for Children with Complex Chronic Conditions.
J. Bogetz, Anna Revette, A. Rosenberg, Danielle D. DeCourcey
2020Journal of Pain and Symptom Management37 citations Open access
Semantic Scholar
Comparing Health Care Provider-Perceived Barriers to Pediatric Palliative Care Fifteen Years Ago and Today
J. Bogetz, Maggie C. Root, Lisa Purser, Christy Torkildson
2019Journal of Palliative Medicine36 citations Open access
Semantic Scholar
Pediatric Palliative Care for Children with Severe Neurological Impairment and Their Families
J. Bogetz, M. Lemmon
2021Journal of Pain and Symptom Management27 citations Open access
Semantic Scholar
Clinical Care Strategies That Support Parents of Children With Complex Chronic Conditions*
J. Bogetz, Anna Revette, Danielle D. DeCourcey
2021Pediatric Critical Care Medicine26 citations
Semantic Scholar
Training Health Care Professionals for 21st-Century Practice: A Systematic Review of Educational Interventions on Chronic Care
J. Bogetz, Caroline E. Rassbach, S. Bereknyei, Fernando S. Mendoza +2 more
2015Academic medicine : journal of the Association of American Medical Colleges26 citations Open access
Semantic Scholar
Professional Bereavement Photography in the Setting of Perinatal Loss: A Qualitative Analysis
F. Ramirez, J. Bogetz, Megan Kufeld, L. Yee
2019Global Pediatric Health24 citations Open access
Semantic Scholar
Goals of Care Among Parents of Children Receiving Palliative Care.
C. Feudtner, Leah Beight, J. Boyden, Douglas L. Hill +8 more
2023JAMA pediatrics23 citations Open access
Semantic Scholar
Creating a Seat at the Table: How Family Meetings Elucidate the Palliative Care Social Work Role
D. Jonas, Caitlin M. Scanlon, L. Schmidt, J. Bogetz
2020Journal of Palliative Medicine22 citations
Semantic Scholar
From Monochromatic to Technicolor: Parent Perspectives on Challenges and Approaches to Seeing Children with Severe Neurological Impairment Holistically
J. Bogetz, H. Lewis, A. Trowbridge, D. Jonas +2 more
2021Journal of Palliative Medicine21 citations
Semantic Scholar
Forming Clinician-Parent Therapeutic Alliance for Children With Severe Neurologic Impairment.
J. Bogetz, A. Trowbridge, H. Lewis, D. Jonas +2 more
2022Hospital Pediatrics20 citations Open access
Semantic Scholar
Identifying the Deliberate Prevention and Intervention Strategies of Pediatric Palliative Care Teams Supporting Providers during Times of Staff Distress
D. Jonas, J. Bogetz
2016Journal of Palliative Medicine18 citations
Semantic Scholar
“I’m completely off base here on what this child is capable of” A qualitative analysis of how medical ableism manifests in PICU clinicians’ care of children with severe neurological impairment
Ellie Oslin, Roberto E Montenegro, Stephanie A. Kraft, Alisa C. Van Cleave +1 more
2024Disability and Health Journal17 citations Open access
Semantic Scholar
Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process.
J. Bogetz, Emily E. Johnston, R. Thienprayoon, Arika Patneaude +2 more
2022Pediatrics17 citations Open access
Semantic Scholar
Stuck Moments and Silver-Linings: The Spectrum of Adaptation Among Non-Bereaved and Bereaved Parents of Adolescents and Young Adults with Advanced Cancer
J. Bogetz, A. Trowbridge, Jenny Kingsley, Mallory R. Taylor +3 more
2021Journal of Pain and Symptom Management17 citations Open access
Semantic Scholar
Pediatric Hospice and Palliative Care Services and Needs Across the Northwest United States.
J. Bogetz, Anne Anderson, Monica Holland, Robert C. Macauley
2022Journal of Pain and Symptom Management16 citations Open access
Semantic Scholar
A Photo-Narrative Intervention for Children with Severe Neurological Impairment in the PICU
J. Bogetz, Ellie Oslin, Emma Meissner, A. Trowbridge +6 more
2024Journal of Pain and Symptom Management14 citations Open access
Semantic Scholar
Measuring pediatric palliative care quality: Challenges and opportunities
J. Boyden, J. Bogetz, Emily E. Johnston, R. Thienprayoon +6 more
2023Journal of Pain and Symptom Management14 citations Open access
Semantic Scholar
Home mechanical ventilation for children with severe neurological impairment: Parents' perspectives on clinician counselling
J. Bogetz, Vasu Munjapara, Carrie M. Henderson, J. Raisanen +4 more
2022Developmental Medicine & Child Neurology14 citations
Semantic Scholar
The Pediatric Palliative Care Quality Network: Palliative Care Consultation and Patient Outcomes.
A. Postier, Maggie C. Root, D. O'Riordan, Lisa Purser +3 more
2023Hospital Pediatrics13 citations
Semantic Scholar
The Impact of Caring for Children With Severe Neurological Impairment on Clinicians
J. Bogetz, A. Trowbridge, D. Jonas, Maggie C. Root +2 more
2022La Clinica pediatrica13 citations
Semantic Scholar
Point: Moral distress can indicate inappropriate care at end‐of‐Life
Jonathan Mullin, J. Bogetz
2018Psycho-Oncology11 citations
Semantic Scholar
Experiences in Coping with Stress—A Qualitative Study of Family Caregivers of Children with Medical Complexity
Mikhaila Layshock, Amy S. Porter, J. Bogetz, Lydia McLachlan +7 more
2024Children10 citations Open access
Semantic Scholar
Empathy Expression in Interpreted and Noninterpreted Care Conferences of Seriously Ill Children.
Aleksandra E. Olszewski, J. Bogetz, Amanda Mercer, M. Bradford +5 more
2023Pediatrics10 citations
Semantic Scholar
“It's My Job to Love Him”: Parenting Adolescents and Young Adults With Advanced Cancer
J. Bogetz, A. Trowbridge, Jenny Kingsley, Mallory R. Taylor +2 more
2020Pediatrics10 citations
Semantic Scholar
Moving Beyond Using the Term Poor Prognosis in Children With Severe Neurological Impairment: A Linguistic Shortcut Better Avoided.
J. Bogetz, B. Wilfond, Aaron Wightman
2019JAMA pediatrics10 citations
Semantic Scholar
Certainty of Decisions: A Process-Based Model for Decision Making for Children With Severe Neurological Impairment
J. Bogetz, J. Hauer
2018La Clinica pediatrica10 citations
Semantic Scholar
Defining Success in Pediatric Palliative Care While Tackling the Quadruple Aim
J. Bogetz, S. Friebert
2017Journal of Palliative Medicine10 citations
Semantic Scholar
A Qualitative Study of Clinicians and Parents of Children with Severe Neurological Impairment on Tools to Support Family-Centered Care
H. Lewis, A. Trowbridge, D. Jonas, A. Rosenberg +1 more
2022Journal of Palliative Medicine9 citations Open access
Semantic Scholar
Communicating With Families of Children With Severe Neurological Impairment
J. Bogetz, R. Boss, M. Lemmon
2021Journal of Pain and Symptom Management9 citations Open access
Semantic Scholar
Caregivers of Children with Medical Complexity: A Qualitative Study of Their Adaptation
Nathaniel D Bayer, Kathleen D Krieg, Reza Yousefi Nooraie, J. Bogetz +8 more
2025Hospital Pediatrics8 citations Open access
Semantic Scholar
Navigating Stress in the Pediatric Intensive Care Unit Among Parents of Children with Severe Neurological Impairment
J. Bogetz, Justin A Yu, Ellie Oslin, Krysta S. Barton +3 more
2023Journal of Pain and Symptom Management8 citations Open access
Semantic Scholar
Use of Cognitive Shortcuts in Decision-making for Children With Severe Neurologic Impairment
J. Bogetz, E. Weiss, D. Opel
2021Pediatrics8 citations
Semantic Scholar
Expert recommendations for the conduct and appraisal of qualitative research in oncology.
E. Kaye, J. Bogetz, Krysta S. Barton, Cynthia J. Bell +7 more
2026The Lancet Oncology7 citations
Semantic Scholar
Meaning-Making Among Parents of Children With Severe Neurologic Impairment in the PICU.
J. Bogetz, Ellie Oslin, M. O'Donnell, Krysta S. Barton +3 more
2024Pediatrics7 citations Open access
Semantic Scholar
Allowing Relationships to Unfold: Consult Reason and Topics Discussed in Initial and Subsequent Palliative Care Visits Among Children Who Died From Relapsed/Refractory Cancer
Maggie C. Root, Jane Koo, Griffin Collins, Neela L. Penumarthy +2 more
2023Journal of Pediatric Hematology/Oncology Nursing7 citations Open access
Semantic Scholar
Child Mortality in the United States: Bridging Palliative Care and Public Health Perspectives
J. Leyenaar, J. Bogetz
2018Pediatrics7 citations Open access
Semantic Scholar
A Qualitative Study of CMC Caregivers’ Perspectives about their Emotional Well-Being
Justin A. Yu, Amy S. Porter, J. Bogetz, Mikhaila Layshock +8 more
2025Journal of Pain and Symptom Management6 citations Open access
Semantic Scholar
Promoting a neuropalliative care approach in fetal neurology.
Nikhita Nanduri, Simran Bansal, L. Treat, J. Bogetz +3 more
2024Seminars in Fetal & Neonatal Medicine6 citations
Semantic Scholar
Barriers to Pediatric Palliative Care: Trainee and Faculty Perspectives Across Two Academic Centers
A. Levine, P. Winn, Alexis Fogel, Efrat Lelkes +3 more
2023Journal of Palliative Medicine6 citations Open access
Semantic Scholar
Neurological conditions: Prognostic communication, shared decision making, and symptom management
Dana Peralta, J. Bogetz, M. Lemmon
2023Seminars in Fetal & Neonatal Medicine6 citations Open access
Semantic Scholar
Relationships and Resources Supporting Children With Serious Illness and Their Parents.
J. Bogetz, Anna Revette, Lindsay Partin, Danielle D. DeCourcey
2022Hospital Pediatrics5 citations
Semantic Scholar
Survey of Pediatric Palliative Care Quality Improvement Training, Activities, and Barriers.
J. Bogetz, Emily Johnston, Prasanna J. Ananth, Arika Patneaude +2 more
2022Journal of Pain and Symptom Management5 citations Open access
Semantic Scholar
Grief Trajectories of Bereaved Parents of Adolescents and Young Adults With Advanced Cancer: A Qualitative Analysis Using Phenomenology
Jenny Kingsley, Mallory R. Taylor, J. Bogetz, A. Trowbridge +2 more
2022Omega5 citations
Semantic Scholar
Development of the Pediatric Palliative Care Quality Network
J. Bogetz, A. Marks, Maggie C. Root, Lisa Purser +1 more
2019Journal of Palliative Medicine5 citations
Semantic Scholar
Relationship between parental distress and proxy symptom reports in pediatric palliative care
Douglas L. Hill, Russell T. Nye, J. Boyden, Emily E Johnston +7 more
2025Journal of Pain and Symptom Management4 citations Open access
Semantic Scholar
Children with severe neurologic impairment and their families in the PICU: a secondary qualitative analysis to assess clinician-family collaboration and mutuality
Ryan F. Sutyla, J. Bogetz, Saisha Dhar, Ellie Oslin +3 more
2025Pediatric Critical Care Medicine4 citations Open access
Semantic Scholar

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A. Rosenberg×12
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Krysta S. Barton×7
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Emily E. Johnston×4

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Anna Revette — researcher profile on SciRah

Danielle D. DeCourcey×3

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Danielle D. DeCourcey — researcher profile on SciRah

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Lisa Purser — researcher profile on SciRah