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J. Macey · SciRah

Researcher profile · Semantic Scholar

J. Macey

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J. Macey — researcher profile on SciRah

h-index: 8
Works: 30
Citations: 440

Most-cited papers

The Alopecia Areata Investigator Global Assessment scale: a measure for evaluating clinically meaningful success in clinical trials
Kathleen W. Wyrwich, H. Kitchen, S. Knight, N. Aldhouse +6 more
2020British Journal of Dermatology103 citations Open access
Semantic Scholar
“‘You lose your hair, what’s the big deal?’ I was so embarrassed, I was so self-conscious, I was so depressed:” a qualitative interview study to understand the psychosocial burden of alopecia areata
N. Aldhouse, H. Kitchen, S. Knight, J. Macey +6 more
2020Journal of Patient-Reported Outcomes97 citations Open access
Semantic Scholar
Life Impact and Treatment Preferences of Individuals with Asthma and Chronic Obstructive Pulmonary Disease: Results from Qualitative Interviews and Focus Groups
H. Svedsater, June Roberts, C. Patel, J. Macey +2 more
2017Advances in Therapy60 citations Open access
Semantic Scholar
Development of Clinician-Reported Outcome (ClinRO) and Patient-Reported Outcome (PRO) Measures for Eyebrow, Eyelash and Nail Assessment in Alopecia Areata
K. Wyrwich, H. Kitchen, S. Knight, N. Aldhouse +6 more
2020American Journal of Clinical Dermatology59 citations Open access
Semantic Scholar
Development of the Scalp Hair Assessment PRO™ measure for alopecia areata
K. Wyrwich, H. Kitchen, S. Knight, N. Aldhouse +6 more
2020British Journal of Dermatology39 citations Open access
Semantic Scholar
Measurement of Utilities Associated with Parenteral Support Requirement in Patients with Short Bowel Syndrome and Intestinal Failure.
R. Ballinger, J. Macey, A. Lloyd, J. Brazier +3 more
2018Clinical Therapeutics18 citations Open access
Semantic Scholar
Dermatologist and Patient Perceptions of Treatment Success in Alopecia Areata and Evaluation of Clinical Outcome Assessments in Japan
J. Macey, H. Kitchen, N. Aldhouse, R. Burge +4 more
2021Dermatologic Therapy17 citations Open access
Semantic Scholar
A qualitative interview study to explore adolescents’ experience of alopecia areata and the content validity of sign/symptom patient‐reported outcome measures
J. Macey, H. Kitchen, N. Aldhouse, E. Edson-Heredia +4 more
2021British Journal of Dermatology11 citations Open access
Semantic Scholar
Treatment Preferences of Patients with Chronic Obstructive Pulmonary Disease: Results from Qualitative Interviews and Focus Groups in the United Kingdom, United States, and Germany.
M. Schroeder, Katie Hall, L. Eliasson, S. Bracey +4 more
2020Chronic obstructive pulmonary diseases7 citations Open access
Semantic Scholar
The Role of Patients in Alopecia Areata Endpoint Development: Understanding Physical Signs and Symptoms.
K. Wyrwich, H. Kitchen, S. Knight, N. Aldhouse +6 more
2020Journal of Investigative Dermatology Symposium Proceedings7 citations Open access
Semantic Scholar
The Challenges of Living with and Caring for a Child or Children Affected by Neuronal Ceroid Lipofuscinosis Type 2 Disease: In-Depth Family Surveys in the United Kingdom and Germany
A. Schulz, Mohit J. Jain, T. Butt, R. Ballinger +7 more
2020Journal of Inborn Errors of Metabolism and Screening7 citations Open access
Semantic Scholar
Using qualitative methods to establish the clinically meaningful threshold for treatment success in alopecia areata
K. Wyrwich, H. Kitchen, S. Knight, N. Aldhouse +4 more
2022Quality of Life Research6 citations Open access
Semantic Scholar
Development of The Oiqol-A: A Health-Related Quality of Life Measure For Adults With Osteogenisis Imperfecta
O. Moshkovich, K. Benjamin, J. Macey, H. Doll +2 more
20173 citations Open access
Semantic Scholar
Utilities Associated with The Number of Days on Parenteral Support in The Treatment of Short Bowel Syndrome
R. Ballinger, J. Macey, A. Lloyd, J. Brazier
20163 citations Open access
Semantic Scholar
PIH65 IMPACT ON CARERS OF PAEDIATRIC PATIENTS RECEIVING PARENTERAL SUPPORT FOR SHORT BOWEL SYNDROME-ASSOCIATED INTESTINAL FAILURE
R. Ballinger, J. Macey, A. Lloyd, K. Chen
2019Value in Health2 citations Open access
Semantic Scholar
Patient-reported outcomes and qualitative interviews in patients with estrogen receptor-positive/human epidermal growth factor receptor 2-negative advanced breast cancer: results from the phase III EMBER-3 trial
G. Curigliano, J. O’Shaughnessy, F. Bidard, M. Casalnuovo +20 more
2026ESMO Open1 citations Open access
Semantic Scholar
PSAT097 Patient Preference Research: Preferred Adjunctive Medication Attributes of Adult Patients with Classic Congenital Adrenal Hyperplasia
Rachel Manahan, J. Macey, M. Farrar, Conor O’Donoghue +7 more
2022Journal of the Endocrine Society1 citations Open access
Semantic Scholar
PAM13 IMPACT ON CARERS OF ADULT PATIENTS RECEIVING PARENTERAL SUPPORT FOR SHORT BOWEL SYNDROME-ASSOCIATED INTESTINAL FAILURE
R. Ballinger, J. Macey, A. Lloyd, K. Chen
2019Value in Health1 citations Open access
Semantic Scholar
VP175 Validating Outcome Assessments For Health Technology Assessment In Ceroid Lipofuscinosis Neuronal 2 (CLN2), An Ultra-Rare Disease
R. Ballinger, S. Llewellyn, J. Macey, L. Eliasson +4 more
2017International Journal of Technology Assessment in Health Care1 citations Open access
Semantic Scholar
Self-stigma in chronic hepatitis B: content and psychometric validation of a new patient-reported outcome instrument
R. Gish, M. Toumi, J. Wallace, C. Cohen +24 more
2023Journal of Hepatology0 citations
Semantic Scholar
PCR114 The Adjunctive Therapy Preferences of Adults with Classic Congenital Adrenal Hyperplasia: A Discrete Choice Experiment
J. Macey, M. Farrar, C. O’Donoghue, S. Knight +6 more
2022Value in Health0 citations Open access
Semantic Scholar
Using qualitative methods to establish the clinically meaningful threshold for treatment success for the Severity of Alopecia Tool (SALT) score
K. Wyrwich, H. Kitchen, S. Knight, N. Aldhouse +4 more
20210 citations Open access
Semantic Scholar
Correction to: Evaluating the Impact and Benefits of Fluticasone Furoate/Vilanterol in Individuals with Asthma or COPD: A Mixed-Methods Analysis of Patient Experiences
H. Svedsater, Helen A. Doll, J. Macey, Gail Miles +2 more
2021Advances in Therapy0 citations Open access
Semantic Scholar
PNS66 Content Validation of Translated Clinical Outcome Assessments Is Important: Recommendations from Experience in Japan and China
J. Macey, H. Pegram, N. Aldhouse, C. Marshall +4 more
20200 citations Open access
Semantic Scholar
PNS11 PATIENT-CENTERED METHODS: CONSIDERATIONS FOR QUALITATIVE RESEARCH TO SUPPORT CONTENT VALIDITY WHEN DEVELOPING CLINICAL OUTCOME ASSESSMENT (COA) MEASURES APPROPRIATE FOR ADOLESCENT PATIENTS (AGED 12-17 YEARS OLD)
C. Marshall, N. Aldhouse, J. Macey, T. Al-zubeidi +2 more
2019Value in Health0 citations Open access
Semantic Scholar
PNS369 RECOMMENDATIONS FOR CONDUCTING COGNITIVE INTERVIEWS REMOTELY TO DEVELOP CLINICAL OUTCOME ASSESSMENTS
J. Macey, C. Marshall, N. Aldhouse, T. Al-Zubeidi +4 more
2019Value in Health0 citations Open access
Semantic Scholar
Evaluating the Impact and Benefits of Fluticasone Furoate/Vilanterol in Individuals with Asthma or COPD: A Mixed-Methods Analysis of Patient Experiences
H. Svedsater, H. Doll, J. Macey, Gail Miles +2 more
2018Advances in Therapy0 citations Open access
Semantic Scholar
PRM184 - ANALYSIS OF UTILITY VALUES USED IN NICE APPRAISALS OF HIGHLY SPECIALISED TECHNOLOGIES
J. Macey, Sl Knight, J. Tosh, J. Lee
2018Value in Health0 citations Open access
Semantic Scholar
Qualitative research evaluating patient preferences for a new COPD treatment
M. Schroeder, L. Eliasson, Katie Hall, J. Macey +3 more
2018Clinical Problems0 citations
Semantic Scholar
Informational and supportive needs of women considering extended hormonal adjuvant treatment (ExHAT) – a Canadian survey conducted by SOLARIS (Summit of Opinion Leaders – Advocacy, Research, Information and Support)
S. Verma, S. Dent, J. Manthorne, X. Song +4 more
20080 citations
Semantic Scholar

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