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J. Twiss · SciRah

Researcher profile · Semantic Scholar

J. Twiss

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J. Twiss — researcher profile on SciRah

h-index: 16
Works: 89
Citations: 906

Most-cited papers

Can we rely on the Dermatology Life Quality Index as a measure of the impact of psoriasis or atopic dermatitis?
J. Twiss, D. Meads, E. Preston, S. Crawford +1 more
2012Journal of Investigative Dermatology114 citations Open access
Semantic Scholar
Validation of the Mood Disorder Questionnaire for screening for bipolar disorder in a UK sample.
J. Twiss, S. Jones, I. Anderson
2008Journal of Affective Disorders86 citations
Semantic Scholar
The development of patient-reported outcome indices for multiple sclerosis (PRIMUS)
L. Doward, S. McKenna, David M. Meads, J. Twiss +1 more
2009Multiple Sclerosis59 citations
Semantic Scholar
Development of a Patient-Reported Outcome Measure for Non-Alcoholic Steatohepatitis (NASH-CHECK): Results of a Qualitative Study
L. Doward, M. Balp, J. Twiss, C. Slota +4 more
2020Patient55 citations Open access
Semantic Scholar
The development and validation of the Unidimensional Fatigue Impact Scale (U-FIS)
David M. Meads, L. Doward, S. McKenna, J. Fisk +2 more
2009Multiple Sclerosis50 citations
Semantic Scholar
Assessing quality of life in Crohn’s disease: development and validation of the Crohn’s Life Impact Questionnaire (CLIQ)
J. Wilburn, S. McKenna, J. Twiss, K. Kemp +1 more
2015Quality of Life Research43 citations
Semantic Scholar
The German adaptation of the Cambridge pulmonary hypertension outcome review (CAMPHOR)
K. Cima, J. Twiss, R. Speich, S. McKenna +7 more
2012Health and Quality of Life Outcomes43 citations Open access
Semantic Scholar
Insights into the natural history of metachromatic leukodystrophy from interviews with caregivers
Magdalena Harrington, D. Whalley, J. Twiss, R. Rushton +3 more
2019Orphanet Journal of Rare Diseases40 citations Open access
Semantic Scholar
Development and validation of the living with chronic obstructive pulmonary disease questionnaire
S. P. McKenna, David M. Meads, L. Doward, J. Twiss +4 more
2011Quality of Life Research38 citations Open access
Semantic Scholar
Psychometric performance of the CAMPHOR and SF-36 in pulmonary hypertension
J. Twiss, S. McKenna, Louise Ganderton, S. Jenkins +4 more
2013BMC Pulmonary Medicine34 citations Open access
Semantic Scholar
International development of the patient-reported outcome indices for multiple sclerosis (PRIMUS).
S. McKenna, L. Doward, J. Twiss, P. Hagell +9 more
2010Value in Health34 citations Open access
Semantic Scholar
A qualitative study of the impact of Crohn's disease from a patient's perspective
J. Wilburn, J. Twiss, K. Kemp, S. McKenna
2016Frontline Gastroenterology33 citations Open access
Semantic Scholar
Validation of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for the Australian and New Zealand population
Louise Ganderton, S. Jenkins, S. P. McKenna, K. Gain +3 more
2011Respirology (Carlton South. Print)28 citations
Semantic Scholar
Adaptation of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) into French-Canadian and English-Canadian.
D. Coffin, K. Duval, S. Martel, J. Granton +4 more
2008Canadian Respiratory Journal28 citations Open access
Semantic Scholar
Interpreting scores on multiple sclerosis-specific patient reported outcome measures (the PRIMUS and U-FIS)
J. Twiss, L. Doward, S. McKenna, B. Eckert
2010Health and Quality of Life Outcomes24 citations Open access
Semantic Scholar
International development of the Unidimensional Fatigue Impact Scale (U-FIS).
L. Doward, D. Meads, J. Fisk, J. Twiss +9 more
2010Value in Health19 citations Open access
Semantic Scholar
Further international adaptation and validation of the Rheumatoid Arthritis Quality of Life (RAQoL) questionnaire
J. Wilburn, S. McKenna, J. Twiss, M. Rouse +9 more
2015Rheumatology International14 citations
Semantic Scholar
Adaptation and validation of the Cambridge pulmonary hypertension outcome review for Sweden
N. Selimovic, B. Rundqvist, Ewa Kjörk, J. Viriden +2 more
2012Scandinavian Journal of Public Health14 citations
Semantic Scholar
The Spatial Analysis of Political Cleavages and the Case of the Ontario Legislature
C. Winn, J. Twiss
1977Canadian Journal of Political Science/Revue canadienne de science politique13 citations
Semantic Scholar
Comparing the impact of psoriasis and atopic dermatitis on quality of life: co-calibration of the PSORIQoL and QoLIAD
J. Twiss, S. McKenna
2014Quality of Life Research11 citations
Semantic Scholar
Translation and validation of non-English versions of the Ankylosing Spondylitis Quality of Life (ASQOL) questionnaire
L. Doward, S. P. McKenna, David M. Meads, J. Twiss +3 more
2007Health and Quality of Life Outcomes11 citations Open access
Semantic Scholar
Co-calibrating quality-of-life scores from three pulmonary disorders: implications for comparative-effectiveness research
M. Rouse, J. Twiss, S. McKenna
2016Journal of Medical Economics10 citations Open access
Semantic Scholar
Applying Rasch analysis to evaluate measurement equivalence of different administration formats of the Activity Limitation scale of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR)
J. Twiss, S. P. McKenna, J. Graham, K. Swetz +2 more
2016Health and Quality of Life Outcomes10 citations Open access
Semantic Scholar
Portuguese validation of the Cambridge pulmonary hypertension outcome review (CAMPHOR) questionnaire
A. Reis, J. Twiss, M. Vicente, F. Gonçalves +5 more
2016Health and Quality of Life Outcomes10 citations Open access
Semantic Scholar
Validation of NASH-CHECK: a novel patient-reported outcome measure for nonalcoholic steatohepatitis
J. Twiss, D. Whalley, L. Doward, M. Balp +4 more
2023Journal of Patient-Reported Outcomes9 citations Open access
Semantic Scholar
Development of a new patient-reported outcome measure for non-alcoholic steatohepatitis: NASH-check
J. Twiss, M. Balp, L. Doward, C. Slota +7 more
20179 citations Open access
Semantic Scholar
Adaptation and validation of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for the Netherlands
M. Wapenaar, J. Twiss, M. Wagenaar, P. Seijkens +5 more
2016Netherlands Heart Journal9 citations Open access
Semantic Scholar
Greek adaptation and validation of the Ankylosing Spondylitis Quality of Life (ASQoL) measure.
J. Graham, M. Rouse, J. Twiss, S. McKenna +1 more
2015Hippokratia9 citations
Semantic Scholar
The brazilian version of the Quality of Life Assessment of Growth Hormone Deficiency in Adults (QoL-AGHDA): Four-stage translation and validation.
A. Ribeiro-Oliveira, S. S. Mol, J. Twiss, G. A. Alencar +9 more
2010Arquivos brasileiros de endocrinologia e metabologia9 citations Open access
Semantic Scholar
Do Negative Cognitive Style and Personality Predict Depression Symptoms and Functional Outcomes in Severe Bipolar and Unipolar Disorders
S. Jones, J. Twiss, I. Anderson
20099 citations
Semantic Scholar
Measuring what matters to patients: The development of the NASH-CHECK, a new patient-reported outcome instrument for nonalcoholic steatohepatitis
L. Doward, M. Balp, J. Twiss, Christina Slota +7 more
20184 citations
Semantic Scholar
Development and validation of the Bowel Cleansing Impact Review (BOCLIR)
L. Doward, J. Wilburn, S. McKenna, R. Leicester +6 more
2013Frontline Gastroenterology4 citations Open access
Semantic Scholar
The living with chronic obstructive pulmonary disease scale was successfully adapted for use in Southern European (Italian and Spanish) and Eastern European (Russian) cultures.
S. McKenna, J. Twiss, S. Crawford, N. Oprandi +2 more
2012Journal of Clinical Epidemiology3 citations
Semantic Scholar
PMS77 FURTHER DEVELOPMENTS OF THE RHEUMATOID ARTHRITIS QUALITY OF LIFE SCALE (RAQOL)
J. Wilburn, S. McKenna, J. Twiss
20093 citations Open access
Semantic Scholar
Exploring the patient perceived impact of non-alcoholic steatohepatitis
L. Doward, M. Balp, K. Stewart, D. Cryer +6 more
20172 citations
Semantic Scholar
PTU-080 Development and Validation of the Crohn’S Life Impact Questionnaire (Cliq)
J. Wilburn, S. P. McKenna, J. Twiss, Karen Kemp +1 more
2013Gut2 citations Open access
Semantic Scholar
Investigation of the Impact of Myelodysplasia (MDS) From the Patients' Perspective
S. McKenna, J. Twiss, J. Wilburn, S. Crawford +2 more
20112 citations
Semantic Scholar
Adaptation of the QoL-AGHDA scale for adults with growth hormone deficiency in four Slavic languages
S. McKenna, J. Wilburn, J. Twiss, S. Crawford +5 more
2011Health and Quality of Life Outcomes2 citations Open access
Semantic Scholar
Ankylosing Spondylitis Quality of Life Questionnaire--Translated Versions
L. Doward, S. McKenna, David M. Meads, J. Twiss +3 more
20171 citations
Semantic Scholar
Understanding the patient-perceived impact of nonalcoholic steatohepatitis: Raising the volume on a silent disease
A. Sanyal, Q. Anstee, C. Brass, N. Agashivala +7 more
20171 citations
Semantic Scholar
SAT0569 The Impact of Pain and Physical Function upon Quality of Life in Osteoarthritis
A. Tennant, Ş. Kutlay, S. P. McKenna, T. Bender +10 more
20161 citations
Semantic Scholar
Assessing Measurement Equivalence of Different Forms of Administration of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) Using Rasch Analysis
J. Twiss, S. McKenna, J. Graham, K. Swetz +2 more
20131 citations Open access
Semantic Scholar
Quality of Life Outcomes in Multiple Sclerosis: A Review of the Literature
M. Rouse, S. McKenna, J. Twiss, J. Graham +1 more
20131 citations Open access
Semantic Scholar
305 Adaptation and Validation of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for Sweden
N. Selimovic, S. McKenna, J. Viriden, Ewa Kjörk +2 more
20111 citations
Semantic Scholar
PIN5 Patient and Clinician Perceived Benefit of Early Consumption of Famciclovir for the Treatment of Herpes Outbreaks
J. Twiss, S. McKenna, M. Bloch, M. Bonney
20111 citations Open access
Semantic Scholar
Myelodysplasia (MDS) patients' Experiences with Blood Transfusions
J. Twiss, S. McKenna, S. Crawford, J. Wilburn +2 more
20111 citations
Semantic Scholar
MC7 TRANSLATION AND VALIDATION OF NEW LANGUAGE VERSIONS OF THE ANKYLOSING SPONDYLITIS QUALITY OF LIFE (ASQOL) QUESTIONNAIRE
L. Doward, S. McKenna, D. Meads, J. Twiss +3 more
20061 citations Open access
Semantic Scholar
The Structure of Party Solidarity in the Ontario Legislative Assembly
J. Twiss
19741 citations
Semantic Scholar
P46 PSYCHOMETRIC PERFORMANCE OF EQ-5D-5L INDEX IN ADULTS AND ADOLESCENTS WITH SEVERE ALOPECIA AREATA: EVIDENCE FROM PHASE III TRIAL DATA
L. Asfour, A. M. Soliman, Shanshan Qin, J. Twiss +6 more
2026Value in Health0 citations
Semantic Scholar
PCR30 PSYCHOMETRIC EVALUATION OF SKINDEX-16 AA, THE ALOPECIA AREATA SYMPTOM IMPACT SCALE (AASIS), AND THE SCALP HAIR ASSESSMENT PATIENT-REPORTED OUTCOME (PRO) IN ADULTS AND ADOLESCENTS WITH SEVERE ALOPECIA AREATA
L. Asfour, A. M. Soliman, Shanshan Qin, J. Twiss +6 more
2026Value in Health0 citations
Semantic Scholar

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