Monitoring Developmental Risk and Promoting Success for Children With Congenital Heart Disease: Recommendations for Cardiac Neurodevelopmental Follow-Up Programs
Cheryl L. Brosiga b, Jennifer L. Butcherc d, Samantha Butlere f, Dawn L. Ilardig h, Renée Sananesi j, Jacqueline H. Sanzk l m n, Erica Soodo p, Kari L. Struemphq r, Janice Waref s
- aMedical College of Wisconsin, Department of Pediatrics and Herma Heart Center, Children’s Hospital of Wisconsin, Milwaukee, Wisconsin
- bChildren's Hospital of Wisconsin, Wauwatosa
- cUniversity of Michigan Medical School and C.S. Mott Children’s Hospital, Ann Arbor, Michigan
- dSamuel and Jean Frankel Cardiovascular Center
- eHarvard Medical School and Boston Children’s Hospital, Boston, Massachusetts
- fHarvard University
- gEmory University School of Medicine and Department of Neuropsychology, Children’s Healthcare of Atlanta, Atlanta, Georgia
- hEmory University
- iLabatt Family Heart Centre, Hospital for Sick Children, Toronto, Canada
- jUniversity of Toronto
- kThe George Washington University School of Medicine, Departments of Psychiatry and Behavioral Sciences &
- l
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Abstract
Survival of children born with complex congenital heart disease (CHD) has improved dramatically in recent years. However, research studies document high rates of neurologic abnormality and neurodevelopmental impairment in this patient population. The American Heart Association (AHA) and American Academy of Pediatrics (AAP) recently released guidelines for developmental screening, surveillance, and evaluation of children with CHD. The AHA and AAP jointly developed the guidelines in light of increased awareness of long-term cognitive, behavioral, and social sequelae of CHD and the underutilization of remedial services and supports that address these concerns. The guidelines provide an impetus for hospitals to incorporate formal neurodevelopmental follow-up as an integral component of cardiac care. Existing cardiac neurodevelopment programs are rapidly emerging in the United States, Canada, and abroad. Members of the Society of Pediatric Psychology’s Cardiology Special Interest Group collaborated in this effort to describe the essential components of cardiac neurodevelopmental follow-up programs, review implementation and program development challenges, and consider future directions for the field of cardiac neurodevelopment.
TL;DRThe essential components of cardiac neurodevelopmental follow-up programs are described, members of the Society of Pediatric Psychology’s Cardiology Special Interest Group collaborated in this effort to describe and consider future directions for the field of cardiac neurodevelopment. (Semantic Scholar)